PERSONAL HEALTH RECORD and BIG DATA
Citizens’ Empowerment
The second edition of the international workshop by CUP 2000 will be dedicated to the topic of citizens’ empowerment, within a high-communication healthcare system where eHealth networks allow a real-time sharing of individual health data (Electronic Health Record, Health Dossier, Diagnostic-Therapeutic Care Pathways) as well as collective (Big Data). In the sharing perspective, made possible by the new technology of latest-generation Internet networks, citizens cease to be passive subjects and become the center of a health project which affects themselves and the collectivity. The workshop will be composed of three roundtables where different national and European experiences will be compared through the participation of scholars, eHealth leaders, and representatives from citizens and policymakers.
TECHNOLOGY, EXPERIENCES AND POLICIES
1st Roundtable: Technology and empowerment
Introduction and coordination: Mauro Moruzzi, Scientific Director, CUP 2000
Derrick De Kerckhove, Scientific Committee, CUP 2000: Big data and empowerment
Margunn Aanestad, Miria Grisot, University of Oslo: Technologies transforming the doctor-patient relationship
Marisa De Rosa, Cineca: Big Data and European planning quality
Valentina Lichtner, United Kingdom: NHS networks and the role of the assisted citizen
Marte Bø, Oslo University Hospital: MinJournal, design and patient-centered technological solutions
Andrea Resca, LUISS University: Institutional IT systems and social networks
More international experts will be connected via videoconference
2nd Roundtable: Citizens as protagonists
Introduction and coordination: Claudio Borghi, Scientific Committee, CUP 2000
Gandolfo Miserendino, Emilia-Romagna Region
Anna Darchini, CUP 2000
Carla Gaveglio, CSI Piedmont
Federica Sandri, Arsenal Veneto
The Electronic Health Record Technology
Roberto Mazza, Anna Roli, Istituto Tumori, Milan: Customer Satisfaction and eHealth networks
Giovanbattista Sisca, Specialist in Sports Medicine, Team Doctor of Bologna Football Club 1909: The Electronic Health Record in sports and among the youth
Alberto Zanutto, University of Trento
Costantino Cipolla, Scientific Committee, CUP 2000
The Electronic Health Record and citizens’ engagement
Fulvio De Nigris, Casa dei Risvegli e Scuola dei Diritti dei Cittadini “Achille Ardigò”: Pain and experiences safeguarding the citizens’ rights
Daniele Donati, University of Bologna: Judicial profiles in relation to Personal Health Records and Big Data
3rd Roundtable: Policies
Coordination and conclusions: Clara Fresca Fantoni, President, AssinterItalia, and Luca Rigoni, Director, AssinterItalia
Diego Conforti, Autonomous Province of Trento
Ferruccio Ferranti, CSI Piedmont
Fosco Foglietta, CUP 2000
Simone Puksic, Insiel Friuli Venezia Giulia
Luca Rizzo Nervo, City of Bologna
Fabio Rombini, Emilia-Romagna Region
Roberto Soj, Lombardia Informatica
Bologna, June 19th, 2017
CUP 2000 Meeting Point – 9.30 AM / 5.30 PM
For further information: +39 051 4208400 / comunicazione@cup2000.it